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Embracing my inner pirate… Arggggg!
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Well, the hits keep on coming! As many of you know I have had a lot of problems with swelling and infections in my left leg due to diabetic complications. In the past few years I’ve had 5 hospitalizations due to infections that have all turned out OK once antibiotics were on board. Starting about…
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I’m Sorry vs Thank You
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The first half of 2026 has been challenging for me! I’ve reached 3 major physical limitations, had 2 full on mental breakdowns and continue to have progressive and ongoing medical issues. If you’re going to continue to read this article, please know that I have great moral and physical support, but this is my story…
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Veteran Physical & Mental Health
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Over the past 2 years, which coincides exactly with my involvement and interaction with the Veterans Administration healthcare system, I have noticed a disturbing trend. Military Veterans are very reluctant to engage with and trust the designated healthcare system that is designed to meet the needs of post service men and women. I will preface…
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Spring 2026 Health Update
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Overall I am feeling pretty good and getting much better sleep with the pain control in place. When I first got the new pain medication there were several instances where I slept for nearly 24 hours and only woke up to eat and then go back to sleep. I guess I needed to catch up…
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Mourning and 2nd Guessing Everything
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As a pretty extreme introvert, emotional displays are not the way I want people to see me and Remember Me, so I tend to be the quiet guy who manages feelings and stressors internally sharing only with my close family and especially with my wife Stephenie.
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December 2025 Health Update
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The past 12 months have been adventurous to say the least with this ALS journey. When I was diagnosed in January of 2024 I was not convinced that I would make it to my 55th birthday which happened on December 6th this year. After the official diagnosis in January I kept it to myself and…
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Feelings – other pALS
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I’ve come to view ALS as the super exclusive, membership only grou,p that I hope no one else ever becomes a member of. Even though ALS is a pretty rare disease, I’ve met numerous people in my local area who have family members or others in their family and friend groups that are (or in…
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Wheelchair Van
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Stephenie is gonna be a Mini-Van driver! Why do I start this article out with this statement? Well because for as long as I have known her, she has said she would never ever drive a minivan under any circumstances! And now that is exactly what we are going to be a brand new minivan…
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Mar 2025 – ALS Update
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The last few months have gone by very quickly with so many distractions, family events and work projects. I tend to keep myself very busy with distractions so that I don’t focus on health issues as much and that seems to be working in my favor pretty well.
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Feeding Tube Surgery
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Muscles degenerate and are affected by ALS all over the body, including core life sustaining systems like breathing and swallowing. For a majority of ALS people, the first symptoms start in the limbs and gradually over time move toward the core of the body and eventually end up impacting muscles in the chest, neck and…
